New Alzheimer's Disease Survey Reveals Disparities Between Beliefs And Behavior In Pursuing Diagnosis
Despite overwhelming support for early Alzheimer's disease (AD) screening and detection, there are striking differences between intentions and actual behavior, according to a new online survey of 1,040 adults age 55 and over titled, "Alzheimer's Disease: Current Attitudes, Perceptions and Knowledge." Nearly 95 percent agree that they would encourage a loved one to seek early diagnosis upon suspecting signs of AD. However, of the 34 percent who previously thought a loved one had the disease, only about one-quarter prompted that person to take an AD screener and less than 40 percent encouraged initiating a conversation with his or her doctor. The survey also found that more than 90 percent of adults age 55 and over are unable to identify the difference between early disease symptoms, late disease symptoms and symptoms unrelated to AD, despite the fact that 78 percent believe they could recognize signs of the disease in themselves or a loved one.
The online survey was conducted by Harris Interactive and commissioned by the Alzheimer's Disease Screening Discussion Group (ADSDG), a consortium of multi-disciplinary experts in AD and senior health. The ADSDG issued a consensus statement in November 2007, recommending routine memory screenings for Americans 65 years of age and older and encouraging increased public education about AD. This year, the group commissioned this national survey as a next step to better understand public perceptions, attitudes and knowledge about the disease, screening and diagnosis. Both the survey and the ADSDG were sponsored by Eisai Inc. and Pfizer Inc.
"Last year the Alzheimer's Disease Screening Discussion Group encouraged seniors to become more familiar with the first signs of Alzheimer's in order to facilitate earlier screening and diagnosis," said Dr. Richard Stefanacci, founding executive director, Geriatric Health Program, University of the Sciences in
In support of this theory, another key survey finding was that while the majority of adults age 55 and over recognize that family members of the person with AD are most likely to notice the need for screening, many admit they are not very knowledgeable about the disease, and are confused about its symptoms. Moreover, nearly one-third of those surveyed are not aware that there are AD medications currently available and about 85 percent of those who are aware do not understand how treatment works.
"There are many reasons to seek out an Alzheimer's diagnosis soon after first symptoms are suspected," said Dr. Paul R. Solomon, professor, department of psychology and program in neuroscience, Williams College; clinical director, The Memory Clinic in Bennington, VT; and survey co-chair and member of the ADSDG. "Not only are there treatments that can slow the progression of symptoms, but an early diagnosis also gives the patient and their loved ones more time to adjust to the news and make important decisions together before the disease advances, impacting the patients' ability to interact and function."
These survey results are particularly important given the rise of AD as the baby boomer population ages -- up to 16 million are estimated to have the disease by 2050. The ADSDG encourages everyone with a loved one age 55 and over to visit http://www.seethesigns.com to learn more about the disease, its signs and symptoms, and complete an online memory screener on behalf of a loved one if symptoms are suspected. Key differences between early signs of disease and normal aging include:
Normal Aging
-- Forgetting the names of people close to you
-- Briefly forgetting part of an experience
-- Occasionally misplacing something
-- Mood changes due to an appropriate cause
-- Changes in your interests
Potential Signs of AD
-- Forgetting the names of people close to you
-- Forgetting a recent experience
-- Not being able to find important things
-- Having unpredictable mood changes
-- Decreased interest in outside activities
About the Alzheimer's Disease Screening Discussion Group (ADSDG)
The ADSDG is a multi-disciplinary panel of experts sponsored by Eisai/Pfizer Inc and first convened in November 2007 to debate the value of AD detection and routine screening. ADSDG members include:
-- Dr. Paul R. Solomon, professor, department of psychology and program in neuroscience, Williams College, MA; clinical director, The Memory Clinic, Bennington, VT; and survey co-chair
-- Dr. Richard Stefanacci, founding executive director, Geriatric Health Program, University of the Sciences in Philadelphia, survey co-chair -- Dr. Barry W. Rovner, director, clinical Alzheimer's disease research at the Farber Institute for Neurosciences, and professor of psychiatry and neurology, Thomas Jefferson University, Philadelphia
-- Dr. Yanira Cruz, president and CEO, National Hispanic Council on Aging
-- Gail Hunt, president and CEO, National Alliance for Caregiving
-- Janet Farr, Alzheimer's disease Caregiver
About Alzheimer's Disease
Alzheimer's disease is the most common type of dementia. It is a progressive brain disease currently ranked as the sixth leading cause of death in the
Alzheimer's disease gradually destroys a person's memory and ability to learn, reason, make judgments, communicate and carry out daily activities. People with Alzheimer's disease experience difficulties in memory severe enough to have an impact on their work, social activities and family life. While there is no cure for Alzheimer's disease, there are treatments to help slow the progression of the symptoms of the disease.